Informant Questionnaire on Cognitive Decline in the Elderly – Self Report (IQCODE-SR)

Foundational Context

The IQCODE was originally developed by Jorm (1994) as an informant-based measure to evaluate cognitive decline independent of educational level, literacy, or baseline intellectual ability. The self-report version (IQCODE-SR) uses the same items but shifts perspective to the individual. Research shows that self-report can be useful, particularly when informants are unavailable, when independence is high, or when early subjective cognitive concerns are the focus.

Because the IQCODE assesses change over a decade, it provides a stable long-term view rather than moment-to-moment cognition. Its mean-score format (rather than raw sums) improves interpretability and comparability across the 16- and 26-item versions.

What the Assessment Measures

The IQCODE-SR captures an individual’s self-reported changes in:

• Everyday memory (names, appointments, recent events)
• Learning (new tasks, new information)
• Reasoning and problem-solving
• Orientation (time, place, familiar routes)
• Functional skills (managing finances, appliances, schedules)
• Complex activities of daily living

Respondents compare their current abilities to performance 10 years earlier, providing a retrospective estimate of cognitive aging.

Interpretation Guidelines

Scores represent the mean of all item responses:

• Scale: 1.0–5.0
• 1.0–<3.0: Stability or improvement
• 3.0: No noticeable change
• >3.0: Increasing concern for decline

Common research-based cutoffs:

• ≥3.30–3.38: Suggestive of meaningful cognitive decline
• ≥3.60: Stronger indication of possible dementia

Interpretation Notes:

• The IQCODE-SR is a screening tool, not a diagnostic instrument
• Cutoffs vary by population, culture, and setting
• Self-report may under- or overestimate decline depending on:
  • Insight
  • Mood (e.g., depression)
  • Health anxiety
  • Personality
  • Cognitive load or stress
• Should be combined with cognitive testing and clinical evaluation

Psychometric Properties

Reliability

• Strong internal consistency in both 16- and 26-item versions
• Good test–retest reliability across diverse samples

Validity

• Correlates well with informant-rated cognitive decline
• Good discriminant validity between dementia and non-dementia groups
• Less affected by education or linguistic background compared to traditional cognitive tests
• Self-report accuracy may be lower in individuals with limited insight or anosognosia

Administration Considerations

• Works well in primary care, geriatrics, neurology, and memory-clinic settings
• Easy to administer digitally or on paper
• Best used when informants are unavailable or when subjective decline is a key clinical concern
• Follow-up cognitive testing (MMSE, MoCA, neuropsychological evaluation) is required for diagnostic clarity
• May require sensitive framing to reduce anxiety about memory concerns

Limitations

• Self-report accuracy varies depending on mood, insight, and psychological factors
• Not suitable for individuals with significant anosognosia or limited self-awareness
• Long-term (10-year) comparison can be difficult for some respondents
• Not intended for diagnosing dementia or determining cognitive capacity
• Not validated for acute cognitive change (e.g., delirium)